‘They’re already struggling’: New changes to aged care spark fear among families

Changes to essential support systems can bring both hope and uncertainty—especially when they affect some of society’s most vulnerable.

A looming shift in the aged care landscape is prompting concern among older Australians and their families, as questions grow about fairness, affordability, and the true cost of staying at home.

As the federal government's aged care reforms edge closer, the reality of what's coming is starting to take shape.


A major shake-up in the aged care sector was on the horizon, and while the federal government had promised improvements, many older Australians feared they were about to be left worse off.

Christina Tsobanis, who cared for her mother with Alzheimer’s, had become one of many raising concerns over the financial strain looming under the upcoming Support at Home Program.

‘We all hope to grow old and we all hope that we have the right supports around us,’ she said.


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Fears grow over looming aged care change. Image source: ABC News/Luke Bowden


Her mother, a full pensioner, received a level 4 home care package which included 16 hours of care each week.

Christina feared that the incoming co-payment model, starting 1 July 2025, would put pressure on those like her mum who were already at their financial limit.

‘They’re already struggling. They’re already at their financial limitations and they’ve worked their whole lives, they’ve paid their taxes,’ she said.


How the new system works

The new program, which had bipartisan support, aimed to shorten wait times and increase the highest care funding from $60,000 to $78,000 annually.

It also introduced eight levels of care, replacing the current four, with payments tied to income and the type of support needed.

Clinical care—such as nursing—would remain fully funded by the government, but independence supports and everyday living tasks like gardening and cleaning would attract out-of-pocket contributions.


Who pays what?

For full pensioners, this meant a zero contribution for clinical care, 5 per cent for independence supports and 17.5 per cent for everyday living support.

Part pensioners and health card holders would pay between 5–50 per cent and 17.5–80 per cent respectively for those two categories.

Self-funded retirees would face 50 per cent and 80 per cent contributions.

For the first time, the government planned to cap service pricing via a regulator to prevent providers from overcharging.


‘No worse off’ clause not enough

Despite the introduction of a ‘no worse off’ clause for those already receiving care since September last year, Christina believed the hardship provisions were not good enough.

‘I don’t even agree with the forcing them into a position where they have to apply for the hardship policy because it’s degrading,’ she said.

‘They have worked all their lives and now they’re elderly they have to sit there and justify their existence?’

She had been attending webinars and diving into research in a bid to understand how these changes would play out.

While her mother was technically protected, Christina calculated that if they were newly entering the system, they’d be out of pocket by $200 every fortnight.

‘The cost would mean we would need to substantially reduce the services we currently receive,’ she said.

She also warned that any fee increases from providers could mean even current recipients would be forced to cut back services.


Newcomers could suffer most

Another person on a level 4 package, Sam*, also fell under the ‘no worse off’ category but criticised the reforms harshly.

‘The hardship rule cost constantly quoted is so restrictive that most will not qualify,’ they said.

‘They may as well have just announced a pension cut but that would not be as palatable. But the outcome is the same for many.’

Sam described the plan as ‘dismal, pathetic, horrific, unrealistic, a poor joke, and a very sad reflection on how society treats the elderly’.


Navigating the system already difficult

Aged care advisor Jim Moraitis said confusion and worry were widespread.

‘The overwhelming sentiment in our [community hub] is one of deep concern, anxiety and frustration,’ he said.

He explained that many current providers waived fees to stay competitive, but that would likely end under the new structure.

Mr Moraitis estimated that full pensioners receiving five to six hours of weekly support might soon pay an extra $10 to $30 per week.

‘For someone living on the full pension of about $1,100 per fortnight, even a modest co-payment could impact affordability, especially for those also managing rent, utilities and other living costs,’ he said.

He added that not all self-funded retirees had spare cash to cover the increases.

‘We may see some retirees opt out of care services altogether, which could lead to delayed support needs and greater pressure on hospitals and aged care facilities down the track,’ he said.


Not all support should cost extra, advocates say

Craig Gear from the Older Persons Advocacy Network (OPAN) acknowledged some positives in the reform.

He supported the added investment in timely home care and allied health services, as well as a new $25,000 palliative care payment.

However, he flagged concerns over what services were being classed as ‘independent support’.

‘We think showers should be considered as part of clinical care that is not a luxury,’ he said.

He also raised alarm over the lack of available pricing information so close to the rollout.

‘Some of the pricing information people are looking for, we know providers are looking for that as well,’ he said.


Assistance exists, but not without hurdles

The Department of Health and Aged Care reiterated that current recipients would not be worse off and that financial assistance would be available.

But for many, that assurance came with a tangle of fine print.

Mr Moraitis said while some families might try to avoid costs by using trusts or gifting money, the government had already tightened those loopholes.

‘If someone gives away large amounts of money or transfers assets below market value, Centrelink still counts those assets for five years when assessing aged care fees and pension eligibility,’ he said.

Family trusts, too, were under scrutiny.

‘If a person is a beneficiary or has control over a trust, the value of the trust may still be considered as part of their assessable assets, depending on how it is structured,’ he said.

He advised families to seek professional financial advice before making any decisions.

‘Anyone considering these strategies should seek financial advice from an accredited aged care specialist to avoid unexpected consequences, including impacts on pension eligibility and estate planning,’ he said.

* Name changed for privacy.


In a previous story, Australians opened up about the emotional toll of navigating the healthcare system.

Their calls for change struck a chord—especially as aged care faces similar upheaval.

Click here to learn more.

Key Takeaways
  • Aged care recipients feared new co-payments under the Support at Home Program would make services unaffordable.
  • The program introduced eight care levels with fees tied to income and support type, affecting pensioners and retirees differently.
  • Advocates warned that essential tasks like showering should not be classified as extra-cost ‘independent support’.
  • Experts said attempts to avoid fees via trusts or gifts would likely fail due to tightened Centrelink rules.

With major changes on the way, will the new aged care model truly support our older Australians—or leave them behind?

Let us know your thoughts in the comments.
 

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I'm the same- no kids, but also no partner. Just retired at 69 and currently self funded.
We’re a bit similar, my husband & I are still reasonably fit & healthy at 75 & 72 but while we have one son, he lives in Perth & will never come back to Tasmania to live. I worry a little about our future as neither of us want to end up in a nursing home. But my friend, who I mentioned in another post on this page, is truly inspirational in spirit & attitude. We might have to move to Perth to be closer to our son but that would be a big challenge. I’m fairly optimistic about things, so hopefully we’ll be okay.
 
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We’re a bit similar, my husband & I are still reasonably fit & healthy at 75 & 72 but while we have one son, he lives in Perth & will never come back to Tasmania to live. I worry a little about our future as neither of us want to end up in a nursing home. But my friend, who I mentioned in another post on this page, is truly inspirational in spirit & attitude. We might have to move to Perth to be closer to our son but that would be a big challenge. I’m fairly optimistic about things, so hopefully we’ll be okay.
Come to Perth! You and hubby are more than welcome! 🎉🥳🍾
 
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Good to know, my Level 3 package eventually went through last week (after 18 months) of being "accepted". I have decided on the Lite 'n Easy meals, which I once tried over 20 years ago and dumped after one month, it was so shocking!
Appears to be a lot better these days, hopefully.
Should be arriving in the next 2-4 weeks.
Thank you.
you're in for a surprise. 20 years ago was mainly salads for the overweight. These days there is a massive variety to choose from. ENJOY
 
vote labour and this is what you will get. 16 hours a week to look after her mother. I am level 3 and i am still trying to fathom my way through it. anyone else out there who has tried gourmet meals. my 1st was chicken and roce, so dry i binned it the 2ns was a lamb casserole, alas no lamb, all gravy and potato. complained got a refund now to make sure they refund with comlink. not going back for a second try.
HAPPY EASTER EVERYONE🐥🌻
I have tried three different ones but not yet found one that is enjoyable to eat. I now buy from small local shops happy to have your custom, most will last for two meals, some I can get three from before they become soggy.

To others struggling to understand how to get through the system:

Do you have an "Outreach" type of service in your area? If so ask them for assistance. In my area of Darebin, Melbourne "Merri Outreach" was fantastic. My patient carer from the hospital, St Vincent's, after surgery referred them to me, which was the best thing anyone could have done for me because I had no idea there were such things available to me.
They were with me when the person came to assess my abilities and my current level, and again when the person from the HCP came to advise on what I could get from the package, I only met with the one person for the HCP because something about her felt so right, a week later I told her she would be my care advisor - I am still with her as advisor and know I made the right decision. However my advisor from Merri Outreach was there to help me by asking the question I had not even thought about, and for getting me on to the eight week "Short Term Restorative Care" package while waiting for the package approval.

Without these people and their services I would probably still be on my own, struggling with everyday tasks.

Do not try to do it on your own.
 
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Come to Perth! You and hubby are more than welcome! 🎉🥳🍾
Thank you Veggiepatch. I love Perth & have wanted to move west for ages but Ted doesn’t like the heat. Might snap up my son’s unit when he sells it, but we see what happens. Must tell you, my son has a new cap emblazoned with MAKE DUTTON OPPOSITION LEADER AGAIN. If you come across a large guy with a beard wearing it, introduce yourself, tell him your from seniors forum. He’ll put it together.
 
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I pulled out of the existing system as I was expected to pay $12 per day whether I used the service or not.
Couldn’t afford the monthly $250 or more per month. Even buying subsided food would have cost more again.
Bet politicians families are doing ok
 
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You can’t blame people for being scared there’s plenty to be worried about lately! I feel very sorry for the young kids growing up at this time because the world is going to hell !
Not enough money, youth crime, no housing, grumpy trumpy doing his best to start a world war. And that’s not all of it !
With China 🇨🇳 along our coastline and Russia 🇷🇺 trying to get a 🦶 foothold in Indonesia 🇮🇩 aged care will be the least of our worries , be grateful for what we have while we have it .
 
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I was at a supermarket checkout the young girl operating it said, " we young ones are keeping the old ones" She obviously was had no clue that ever since we started to work, we paid National Insuranc and taxes. How about these matters being taught in school.
 
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I was at a supermarket checkout the young girl operating it said, " we young ones are keeping the old ones" She obviously was had no clue that ever since we started to work, we paid National Insuranc and taxes. How about these matters being taught in school.
Ignorance is bliss , we have earned our stripes,being through a world war ,recession, when food was hard to get ,our parents having to use coupons for food, clothing etc, when they were used up having to wait for more coupons. And they 🤔 think they are hard done by . 👦 oh boy do they need a lesson in hardship.
 
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I agree with you. I spent yesterday afternoon going through all the candidates in my electorate to see which policies I liked best. I do not like what the major parties have done to us. Hence I am going to put them last. With a bit of luck we may get in a minor candidate who will help keep the bastards honest.

Instead of lowering our power prices by bringing back coal fired power stations, they throw money at us. Other countries use coal and yet we aren't allowed to. It is our money and they have to take it from us to give it back to us. It is time we got out of the Paris Climate Agreement - the USA has done it now. This global warming is just a con. The CSIRO who advised the government about this has not provided one scrap of scientific evidence to prove beyond any reasonable doubt that climate change is man-made.

Australia has a massive debt and yet we send money off-shore. We need to stop this and help our own Australians.

There are so many issues that the majors have caused that somehow we have to try and change. Manufacturing needs to come back to Australia. There are too many immigrants being allowed into this country. Many of these people are from violent areas of the world. I agree that there are only 2 sexes - you are either male or female. Apparently you can't say this now in Australia although it is a fact. What have the parties in power allowed to happen?

I pray that commonsense will prevail and that we can rid this country of those people who changed our lives and are continuing to do so.
I intend to collect all how to vote cards ( they should be banned ) to make sure my vote goes where intended ,and not some one I never voted for.
 
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I've been trying to bring this into the open for such a long time. No-one wanted to listen. For a start it's NOT JUST LABOUR IT'S ALL OF THEM especially Leg-o-Mutton Dutton. My Advocate and I have been trying to help a friend who's husband died almost 2 years ago. She has a very bad heart, bad back, lives on a hill with no-one to help her except her dog. My friend was told she was a level 3 but is STILL waiting for her red number. Lyn's nearest family is over 400ks away and she is trying to get her property (a plant nursery on about 25 acres) up to scratch to sell it. My friend is almost 75years old. She can't get ANY help "at least until July 2025" which was told to her over 18 months ago. Looks like she'll end up with nothing.

As for me, when I tried to go from level 3 to 4 I had to fight for it with the help of an Advocate (wonderful lady) but only by my sending my medical records to the gov't (the aged care polly was disgraceful, took all the work I'd done and claimed it as her own) and finally I was granted Level 4. This was still a joke as with the exception of my scooter which is useless where I live I HAVE BOUGHT EVERYTHING MYSELF. I've had my beautiful carer for almost 8 years and she is more like the type of daughter I'd wished for but didn't get. The mob I'm with 'FIVE GOOD FRIENDS" is a joke in this town. Such a bad name. They sent me 2 women for cleaning who wouldn't work in an iron lung. Last week my carer found a cleaner for me. Lovely lady so I hope it works out.
I have PTSD, useless legs, arm going the same way and after Bone Density Scan found I was born with so many spinal bits missing it's a joke as I've busted my gut working since 2 days out of school in 1957. I paid my taxes and was boringly honest(a JP since 1996). I've finally given up cooking main meals (now use LiteNEasy), do most of my own house work. The only ones to benefit from our money are the rip off merchants who say lots and give nothing but line their own nests. One is called FIVE GOOD FRIENDS who have such a bad name in our town. One example is a woman who overseas my package lives over 1000ks from me in another State and thinks she knows it all.
Folks we need too make a big noise, my voice alone is getting nowhere.
I get really annoyed at how much is going to be spent on Olympic Games. GAMES FOR PEOPLE WHO MOSTLY HAVEN'T DONE A DAYS WORK IN THEIR LIVES while the hungry and homeless get absolutely nothing. If anyone can tell me how I'm wrong I'm listening.
Sorry this is so long but after dealing with a hacker supposedly from Microsoft earlier in the week I'm on my soap box. Please forgive me friends. Pain makes you do odd things.
Thank you for your honesty , the way governments waste taxpayers 💰 money is disgusting it doesn’t bother them after all it’s not coming out of their pockets.
 
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Ignorance is bliss , we have earned our stripes,being through a world war ,recession, when food was hard to get ,our parents having to use coupons for food, clothing etc, when they were used up having to wait for more coupons. And they 🤔 think they are hard done by . 👦 oh boy do they need a lesson in hardship.
The only things taught these days is greed, selfishness and memememememe. If only they were taught things like real hunger, homelessness and how to really care for sick kids and adults without screaming I WANT and where in the name of heaven did this idea of GO FUND ME come from? No matter what today's younger ones expect everyone to pay for them. They really do make me heartily sick.
 
There are advocacy services (look under Aged Care) in the websites or directory. At present the changes to the aged care system are very vague but am expecting reduction in services/money for services and equipment. We have a marvellous cleaner who comes in weekly and assists me as I have back problems and arthritis. I hope I can continue to assist my husband in a wheelchair with showers so they don't become a luxury.
 
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Overcharging?
There's a guy I know in Sydney who owns a few of those nursing homes. His name is Mario. He drives a Mercedes Sports and wears a really thick gold chain around his neck. He's never heard of the word "overcharging" as he drives his sports car to his luxury home in Avalon, Sydney.
 
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