‘They’re already struggling’: New changes to aged care spark fear among families

Changes to essential support systems can bring both hope and uncertainty—especially when they affect some of society’s most vulnerable.

A looming shift in the aged care landscape is prompting concern among older Australians and their families, as questions grow about fairness, affordability, and the true cost of staying at home.

As the federal government's aged care reforms edge closer, the reality of what's coming is starting to take shape.


A major shake-up in the aged care sector was on the horizon, and while the federal government had promised improvements, many older Australians feared they were about to be left worse off.

Christina Tsobanis, who cared for her mother with Alzheimer’s, had become one of many raising concerns over the financial strain looming under the upcoming Support at Home Program.

‘We all hope to grow old and we all hope that we have the right supports around us,’ she said.


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Fears grow over looming aged care change. Image source: ABC News/Luke Bowden


Her mother, a full pensioner, received a level 4 home care package which included 16 hours of care each week.

Christina feared that the incoming co-payment model, starting 1 July 2025, would put pressure on those like her mum who were already at their financial limit.

‘They’re already struggling. They’re already at their financial limitations and they’ve worked their whole lives, they’ve paid their taxes,’ she said.


How the new system works

The new program, which had bipartisan support, aimed to shorten wait times and increase the highest care funding from $60,000 to $78,000 annually.

It also introduced eight levels of care, replacing the current four, with payments tied to income and the type of support needed.

Clinical care—such as nursing—would remain fully funded by the government, but independence supports and everyday living tasks like gardening and cleaning would attract out-of-pocket contributions.


Who pays what?

For full pensioners, this meant a zero contribution for clinical care, 5 per cent for independence supports and 17.5 per cent for everyday living support.

Part pensioners and health card holders would pay between 5–50 per cent and 17.5–80 per cent respectively for those two categories.

Self-funded retirees would face 50 per cent and 80 per cent contributions.

For the first time, the government planned to cap service pricing via a regulator to prevent providers from overcharging.


‘No worse off’ clause not enough

Despite the introduction of a ‘no worse off’ clause for those already receiving care since September last year, Christina believed the hardship provisions were not good enough.

‘I don’t even agree with the forcing them into a position where they have to apply for the hardship policy because it’s degrading,’ she said.

‘They have worked all their lives and now they’re elderly they have to sit there and justify their existence?’

She had been attending webinars and diving into research in a bid to understand how these changes would play out.

While her mother was technically protected, Christina calculated that if they were newly entering the system, they’d be out of pocket by $200 every fortnight.

‘The cost would mean we would need to substantially reduce the services we currently receive,’ she said.

She also warned that any fee increases from providers could mean even current recipients would be forced to cut back services.


Newcomers could suffer most

Another person on a level 4 package, Sam*, also fell under the ‘no worse off’ category but criticised the reforms harshly.

‘The hardship rule cost constantly quoted is so restrictive that most will not qualify,’ they said.

‘They may as well have just announced a pension cut but that would not be as palatable. But the outcome is the same for many.’

Sam described the plan as ‘dismal, pathetic, horrific, unrealistic, a poor joke, and a very sad reflection on how society treats the elderly’.


Navigating the system already difficult

Aged care advisor Jim Moraitis said confusion and worry were widespread.

‘The overwhelming sentiment in our [community hub] is one of deep concern, anxiety and frustration,’ he said.

He explained that many current providers waived fees to stay competitive, but that would likely end under the new structure.

Mr Moraitis estimated that full pensioners receiving five to six hours of weekly support might soon pay an extra $10 to $30 per week.

‘For someone living on the full pension of about $1,100 per fortnight, even a modest co-payment could impact affordability, especially for those also managing rent, utilities and other living costs,’ he said.

He added that not all self-funded retirees had spare cash to cover the increases.

‘We may see some retirees opt out of care services altogether, which could lead to delayed support needs and greater pressure on hospitals and aged care facilities down the track,’ he said.


Not all support should cost extra, advocates say

Craig Gear from the Older Persons Advocacy Network (OPAN) acknowledged some positives in the reform.

He supported the added investment in timely home care and allied health services, as well as a new $25,000 palliative care payment.

However, he flagged concerns over what services were being classed as ‘independent support’.

‘We think showers should be considered as part of clinical care that is not a luxury,’ he said.

He also raised alarm over the lack of available pricing information so close to the rollout.

‘Some of the pricing information people are looking for, we know providers are looking for that as well,’ he said.


Assistance exists, but not without hurdles

The Department of Health and Aged Care reiterated that current recipients would not be worse off and that financial assistance would be available.

But for many, that assurance came with a tangle of fine print.

Mr Moraitis said while some families might try to avoid costs by using trusts or gifting money, the government had already tightened those loopholes.

‘If someone gives away large amounts of money or transfers assets below market value, Centrelink still counts those assets for five years when assessing aged care fees and pension eligibility,’ he said.

Family trusts, too, were under scrutiny.

‘If a person is a beneficiary or has control over a trust, the value of the trust may still be considered as part of their assessable assets, depending on how it is structured,’ he said.

He advised families to seek professional financial advice before making any decisions.

‘Anyone considering these strategies should seek financial advice from an accredited aged care specialist to avoid unexpected consequences, including impacts on pension eligibility and estate planning,’ he said.

* Name changed for privacy.


In a previous story, Australians opened up about the emotional toll of navigating the healthcare system.

Their calls for change struck a chord—especially as aged care faces similar upheaval.

Click here to learn more.

Key Takeaways
  • Aged care recipients feared new co-payments under the Support at Home Program would make services unaffordable.
  • The program introduced eight care levels with fees tied to income and support type, affecting pensioners and retirees differently.
  • Advocates warned that essential tasks like showering should not be classified as extra-cost ‘independent support’.
  • Experts said attempts to avoid fees via trusts or gifts would likely fail due to tightened Centrelink rules.

With major changes on the way, will the new aged care model truly support our older Australians—or leave them behind?

Let us know your thoughts in the comments.
 

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The frightening part of that article is that this has bipartisan support. What is wrong with the current parties? Both of them seem to look at pensioners and the aged as parasites instead of human beings who have paid their way and now need a little help to navigate old age and ill health. It should not be so hard! A 90 year old woman can only get cleaning once a month is outrageous. Trying to even obtain a Home Care Package is nearly impossible unless you're almost bed-ridden. Make it easier for us to get help, not harder. Wake up, politicians!!!
I get cleaning once a fortnight and a gardener once a month
 
You should be able to get help through Aged Care or a similar Senior Organisation!
Yes I have aged care (govt Department) phone me every 2 months asking is my Home Care Package level 4 still O K .Do I want help going to another provider,do I want respite help or help finding a nursing home which is my next step after here.I agree it is a nightmare ,gratefully I am carers to read the fine print for me and explain things ion a way I can understand.
 
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Yes I have aged care (govt Department) phone me every 2 months asking is my Home Care Package level 4 still O K .Do I want help going to another provider,do I want respite help or help finding a nursing home which is my next step after here.I agree it is a nightmare ,gratefully I am carers to read the fine print for me and explain things ion a way I can understand.
I have severe Chronic Fatigue Syndrome, caused from pain, which gives me brain fog, affects my eyesight and obviously, causes lethargy, leading to blackouts and fainting when I sit or stand.
The staff from Aged Care and my carer company, have come to my home and filled in all my forms - even for Centrelink, right from the start.
Let them know you need assistance, whether it's done via the phone, internet or preferably at your home.
I didn't even ask, they offered it to me.
 
vote labour and this is what you will get. 16 hours a week to look after her mother. I am level 3 and i am still trying to fathom my way through it. anyone else out there who has tried gourmet meals. my 1st was chicken and roce, so dry i binned it the 2ns was a lamb casserole, alas no lamb, all gravy and potato. complained got a refund now to make sure they refund with comlink. not going back for a second try.
HAPPY EASTER EVERYONE🐥🌻
May I suggest Lite&easy, if available, where you live? I tried the rest and then went to the best. I've been using them for over two years and have never had a bad meal from a vast selection.
 
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Of course there rising, Albo gives everyone a pay rise every couple of months. Governments should work to solve the cost blow out problems not just keep throwing money we don't have at it, another pay rise aye Albo, yeah why not. Build more nursing and retirement homes instead of wasting money over seas every week or trying to divide Australia by race. What could that 450 million have done, and that 600 million to sponsor a football team a lot more than put you on the map for the world to see what an idiot you are that's for sure. The problem is people are going to put the idiot back in, God help Australia because no-one else will be able to!
You’re just venting your politics because there is an election happening.
 
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Australia will continue to fail. We will be a 3rd world country in the very near future. The rich will get richer & the poor will get poorer & the politicians couldn't care less. Just lining their own pockets. When they do a bad job they leave with big fat payouts & massive superannuation. Private sector, you do something wrong you are out on your ass with a big fat nothing.
I agree with you. I spent yesterday afternoon going through all the candidates in my electorate to see which policies I liked best. I do not like what the major parties have done to us. Hence I am going to put them last. With a bit of luck we may get in a minor candidate who will help keep the bastards honest.

Instead of lowering our power prices by bringing back coal fired power stations, they throw money at us. Other countries use coal and yet we aren't allowed to. It is our money and they have to take it from us to give it back to us. It is time we got out of the Paris Climate Agreement - the USA has done it now. This global warming is just a con. The CSIRO who advised the government about this has not provided one scrap of scientific evidence to prove beyond any reasonable doubt that climate change is man-made.

Australia has a massive debt and yet we send money off-shore. We need to stop this and help our own Australians.

There are so many issues that the majors have caused that somehow we have to try and change. Manufacturing needs to come back to Australia. There are too many immigrants being allowed into this country. Many of these people are from violent areas of the world. I agree that there are only 2 sexes - you are either male or female. Apparently you can't say this now in Australia although it is a fact. What have the parties in power allowed to happen?

I pray that commonsense will prevail and that we can rid this country of those people who changed our lives and are continuing to do so.
 
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I've been trying to bring this into the open for such a long time. No-one wanted to listen. For a start it's NOT JUST LABOUR IT'S ALL OF THEM especially Leg-o-Mutton Dutton. My Advocate and I have been trying to help a friend who's husband died almost 2 years ago. She has a very bad heart, bad back, lives on a hill with no-one to help her except her dog. My friend was told she was a level 3 but is STILL waiting for her red number. Lyn's nearest family is over 400ks away and she is trying to get her property (a plant nursery on about 25 acres) up to scratch to sell it. My friend is almost 75years old. She can't get ANY help "at least until July 2025" which was told to her over 18 months ago. Looks like she'll end up with nothing.

As for me, when I tried to go from level 3 to 4 I had to fight for it with the help of an Advocate (wonderful lady) but only by my sending my medical records to the gov't (the aged care polly was disgraceful, took all the work I'd done and claimed it as her own) and finally I was granted Level 4. This was still a joke as with the exception of my scooter which is useless where I live I HAVE BOUGHT EVERYTHING MYSELF. I've had my beautiful carer for almost 8 years and she is more like the type of daughter I'd wished for but didn't get. The mob I'm with 'FIVE GOOD FRIENDS" is a joke in this town. Such a bad name. They sent me 2 women for cleaning who wouldn't work in an iron lung. Last week my carer found a cleaner for me. Lovely lady so I hope it works out.
I have PTSD, useless legs, arm going the same way and after Bone Density Scan found I was born with so many spinal bits missing it's a joke as I've busted my gut working since 2 days out of school in 1957. I paid my taxes and was boringly honest(a JP since 1996). I've finally given up cooking main meals (now use LiteNEasy), do most of my own house work. The only ones to benefit from our money are the rip off merchants who say lots and give nothing but line their own nests. One is called FIVE GOOD FRIENDS who have such a bad name in our town. One example is a woman who overseas my package lives over 1000ks from me in another State and thinks she knows it all.
Folks we need too make a big noise, my voice alone is getting nowhere.
I get really annoyed at how much is going to be spent on Olympic Games. GAMES FOR PEOPLE WHO MOSTLY HAVEN'T DONE A DAYS WORK IN THEIR LIVES while the hungry and homeless get absolutely nothing. If anyone can tell me how I'm wrong I'm listening.
Sorry this is so long but after dealing with a hacker supposedly from Microsoft earlier in the week I'm on my soap box. Please forgive me friends. Pain makes you do odd things.
 
I agree with you. I spent yesterday afternoon going through all the candidates in my electorate to see which policies I liked best. I do not like what the major parties have done to us. Hence I am going to put them last. With a bit of luck we may get in a minor candidate who will help keep the bastards honest.

Instead of lowering our power prices by bringing back coal fired power stations, they throw money at us. Other countries use coal and yet we aren't allowed to. It is our money and they have to take it from us to give it back to us. It is time we got out of the Paris Climate Agreement - the USA has done it now. This global warming is just a con. The CSIRO who advised the government about this has not provided one scrap of scientific evidence to prove beyond any reasonable doubt that climate change is man-made.

Australia has a massive debt and yet we send money off-shore. We need to stop this and help our own Australians.

There are so many issues that the majors have caused that somehow we have to try and change. Manufacturing needs to come back to Australia. There are too many immigrants being allowed into this country. Many of these people are from violent areas of the world. I agree that there are only 2 sexes - you are either male or female. Apparently you can't say this now in Australia although it is a fact. What have the parties in power allowed to happen?

I pray that commonsense will prevail and that we can rid this country of those people who changed our lives and are continuing to do so.
Bless you Girl. At least one person with eyes wide open. Thank you.
 
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Two of my friends have been lucky enough to receive packages fairly quickly. One has dementia & only had nearly a 3 month wait for a level 2 package which was upgraded to level 3 the following week and the other lady had a stroke & was so determined to return home, where she lives alone, that they gave her 12 weeks to prove that she can cope. Amazingly with a lot of help, she is coping & will go onto a level 4 package in another 8 weeks time. I shouldn’t be surprised that my nearly 95 year old friend is managing, she’s like a little energiser (battery) rabbit. Sometimes these packages work rather quickly for some while others have an extremely long wait. I’ve been stunned by the charges against packages for nurses, showering & other services, the costs are astronomical. Most of the cleaners that people on support seem to be sent are hopeless. Apparently they rarely vacuum behind doors or under mats, just around the middle of the room. Think I’ll keep doing mine myself. Maybe my friends are just unlucky.
 
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I've been trying to bring this into the open for such a long time. No-one wanted to listen. For a start it's NOT JUST LABOUR IT'S ALL OF THEM especially Leg-o-Mutton Dutton. My Advocate and I have been trying to help a friend who's husband died almost 2 years ago. She has a very bad heart, bad back, lives on a hill with no-one to help her except her dog. My friend was told she was a level 3 but is STILL waiting for her red number. Lyn's nearest family is over 400ks away and she is trying to get her property (a plant nursery on about 25 acres) up to scratch to sell it. My friend is almost 75years old. She can't get ANY help "at least until July 2025" which was told to her over 18 months ago. Looks like she'll end up with nothing.

As for me, when I tried to go from level 3 to 4 I had to fight for it with the help of an Advocate (wonderful lady) but only by my sending my medical records to the gov't (the aged care polly was disgraceful, took all the work I'd done and claimed it as her own) and finally I was granted Level 4. This was still a joke as with the exception of my scooter which is useless where I live I HAVE BOUGHT EVERYTHING MYSELF. I've had my beautiful carer for almost 8 years and she is more like the type of daughter I'd wished for but didn't get. The mob I'm with 'FIVE GOOD FRIENDS" is a joke in this town. Such a bad name. They sent me 2 women for cleaning who wouldn't work in an iron lung. Last week my carer found a cleaner for me. Lovely lady so I hope it works out.
I have PTSD, useless legs, arm going the same way and after Bone Density Scan found I was born with so many spinal bits missing it's a joke as I've busted my gut working since 2 days out of school in 1957. I paid my taxes and was boringly honest(a JP since 1996). I've finally given up cooking main meals (now use LiteNEasy), do most of my own house work. The only ones to benefit from our money are the rip off merchants who say lots and give nothing but line their own nests. One is called FIVE GOOD FRIENDS who have such a bad name in our town. One example is a woman who overseas my package lives over 1000ks from me in another State and thinks she knows it all.
Folks we need too make a big noise, my voice alone is getting nowhere.
I get really annoyed at how much is going to be spent on Olympic Games. GAMES FOR PEOPLE WHO MOSTLY HAVEN'T DONE A DAYS WORK IN THEIR LIVES while the hungry and homeless get absolutely nothing. If anyone can tell me how I'm wrong I'm listening.
Sorry this is so long but after dealing with a hacker supposedly from Microsoft earlier in the week I'm on my soap box. Please forgive me friends. Pain makes you do odd things.
This is terrible & I’m sad that you have so many problems. I wish I could come & help you with housework etc but Launceston is a bit far away from you. Keep fighting & I’ll ring my MP & aspiring MP & complain about the treatment of aged people. Also most of us are sympathetic whenever you want to rant about stuff.
 
I'm scared of becoming old and in need of help. How will I cope
It is no joy Shellface. Ido not get any help from my son who moved to France. I only have a sister left who lives in NSW & am trying to move closer to her which is not easy. I am on an aged pension but never go out as you cannot afford to with living expenses, but I think a lot of pensioners are doing it tough it’s just the joy of getting old. 😔😔
 
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This is terrible & I’m sad that you have so many problems. I wish I could come & help you with housework etc but Launceston is a bit far away from you. Keep fighting & I’ll ring my MP & aspiring MP & complain about the treatment of aged people. Also most of us are sympathetic whenever you want to rant about stuff.
thank you PattiB. I really do appreciate your kind words. 💋
 
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I worry about the future. I am a self funded retiree so will have to pay. My problem is that I am the last of the line. We did not have children so it is just us left now. I do not know how we will navigate the system, that is so confusing. I also fear of being conned, ripped off and taken advantage of due to the complexities.
I'm the same- no kids, but also no partner. Just retired at 69 and currently self funded.
 
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May I suggest Lite&easy, if available, where you live? I tried the rest and then went to the best. I've been using them for over two years and have never had a bad meal from a vast selection.
I couldn't agree more. I've had this for about the last 5 months. I make direct contact with IVY in Sydney and Carl in Brisbane and you couldn't find 2 nicer people. I always get things like fish pie, lasagna and stews to keep on standby in case I don't like eating at night they make great breakfasts. This company is in all States and been around for a long time. I first put a friend onto L&N over 20 years ago and actually spoke to the same lady from then when I made contact this time. I only get main meal at the moment because I still like to do some things myself. Please be aware that there are different meal sizes depending on your appetite and they are different prices so ask for their menu booklets. They will make your mouth water.
 
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It is no joy Shellface. Ido not get any help from my son who moved to France. I only have a sister left who lives in NSW & am trying to move closer to her which is not easy. I am on an aged pension but never go out as you cannot afford to with living expenses, but I think a lot of pensioners are doing it tough it’s just the joy of getting old. 😔😔
Don't allow I CAN'T into your dictionary. I'LL TRY leaves the door open.
 
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May I suggest Lite&easy, if available, where you live? I tried the rest and then went to the best. I've been using them for over two years and have never had a bad meal from a vast selection.
Good to know, my Level 3 package eventually went through last week (after 18 months) of being "accepted". I have decided on the Lite 'n Easy meals, which I once tried over 20 years ago and dumped after one month, it was so shocking!
Appears to be a lot better these days, hopefully.
Should be arriving in the next 2-4 weeks.
Thank you.
 
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This is terrible & I’m sad that you have so many problems. I wish I could come & help you with housework etc but Launceston is a bit far away from you. Keep fighting & I’ll ring my MP & aspiring MP & complain about the treatment of aged people. Also most of us are sympathetic whenever you want to rant about stuff.
And Perth is even further away! :cry:
 
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PLEASE EXPLAIN...(i.e. WTF)!!!!!
When I was initially 'accepted' on Aged Care, I was given 3 hours of cleaning per month - down from the 8 hours per month that I previously received in the past 2 years, from Disability.
I was also given I hour a week for personal service and offered the "meal delivery" scheme.

I thought "meal delivery" was meals that I would purchase, but were delivered free, as one gets when their Home Package goes through, such as Lite 'n Easy.
I was horrified and embarrassed to receive Wheels on Meals, as they were renowned (around the world) for supplying FREE meals. Something I would NEVER accept, hence the embarrassment!

And... when I noticed, after cancelling, then reading the menu, I was shocked to see they were CHARGING for the meals.
As if that wasn't bad enough, the average fee was around $13 per meal!
Why, because I was buying all my frozen meals from Woolies, which were $4.50-$7, an average of $6 per meal!

PS: Even though this happened 18 months ago, I'm still shocked, even though Woolies' prices have now increased about $2 per meal.
 
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