Dementia - a diagnosis that strikes fear in the hearts of those who receive it. Not only does this cruel disease rob people of their memories, but recent research has revealed a distressing link between dementia and self-harm. It's like being caught in the middle of a storm with no shelter in sight.

This alarming discovery highlights the pressing need for more support and understanding for people living with dementia and their loved ones. It's a call to action that cannot be ignored.

One person who knows all too well the devastating effects of dementia is Stephen Grady, a brilliant scientist and leader in his field. When he was diagnosed with dementia at just 60 years old, he felt like his worth had been suddenly stripped away. 'It was like I went from being a valuable member of society to being worthless,' he shared.

Stephen's story is one that many can relate to, as the diagnosis of dementia can leave people feeling hopeless and asking themselves, 'Is life still worth living?' It's a heartbreaking question that deserves a compassionate and empathetic response.

Research has found that dementia patients are more likely to self-harm within the first year of diagnosis. Credit: Unsplash/Kaspars Eglitis.

A recent study conducted at the University of New South Wales has shed new light on the devastating impact of dementia on patients and their families.

The study found that dementia patients are at a higher risk of self-harm within the first year of diagnosis, adding to the already enormous challenges faced by both patients and caregivers.

Dr Adrian Walker, the lead author of the study, described dementia as a 'perfect storm' of factors contributing to self-destructive behaviour. The research team analysed data from over 180,000 people admitted to hospitals in New South Wales between 2001 and 2015, including those diagnosed with dementia and those admitted for self-harm injuries.

The results of the study were alarming. Of the 154,811 people recorded with dementia, 692 were readmitted to the hospital for self-harm within 12 months of their first dementia visit. These findings highlight the urgent need for increased support and resources for both patients and caregivers during this challenging time.

For families who suddenly find themselves caring for a loved one with dementia, the burden can be overwhelming. The emotional toll of watching a loved one struggle with memory loss and confusion, coupled with the added stress of providing round-the-clock care, can be devastating.

The study has also raised some difficult questions regarding the complex relationship between the two. While the research suggests a strong connection between the two, the possibility of one directly causing the other remains unclear.

According to Dr Walker, it's possible that both factors are linked, but there may be other contributing factors that require further investigation.

The researchers also found that younger patients diagnosed with dementia were more likely to engage in self-harm than those who were diagnosed at an older age. Additionally, patients with complex psychiatric profiles were at a higher risk of hospitalisation for self-harm.

The research brings attention to the urgent need for increased understanding and support for those living with dementia and their families. Credit: Unsplash/Steven HWG.

In Australia alone, there are currently over 400,000 individuals living with dementia, and this number is expected to rise to over 800,000 by 2058.

Dementia is already the leading cause of death for women and the second leading cause of death for all Australians, making it a significant public health concern.

Although there are challenges in interpreting the data due to the lack of reliable information and confusion between self-harm and accidents, Associate Professor Simone Reppermund from the University of New South Wales emphasised that self-harm could be a result of the diagnosis.

Individuals with dementia may feel helpless, lonely, and devoid of purpose, leading to a sense of hopelessness and a higher risk of self-harm.

The findings of this research have been published in Alzheimer's and Dementia: The Journal of the Alzheimer's Association, serving as an essential call to action for increased support, understanding, and prevention measures for those affected by dementia.

Key Takeaways

• A recent study conducted by the University of New South Wales has found a strong link between dementia and self-harm in the first year after diagnosis.
• The research revealed that of the 154,811 people recorded with dementia in the study, 692 were readmitted to the hospital for self-harm within 12 months of their first dementia visit.
• The findings underscore the urgent need for increased support, understanding, and prevention measures for those affected by dementia.

As we look towards the future, it's clear that there is much work to be done — such as more research, treatment, and resources to better support people living with dementia and their families, who are often thrust into the role of caregivers with little warning or preparation.

We also need to work towards creating more dementia-friendly communities, where people with dementia can live with autonomy, purpose, and dignity.

What are your thoughts on this important issue? Have you or someone you know been affected by dementia? What steps do you think we can take to better support individuals living with dementia and their families? Share your thoughts and experiences in the comments below.

By working together to raise awareness and provide support, we can ensure that those living with dementia and their loved ones receive the care and compassion they need. Credit: Unsplash/Gus Moretta.

At Senior's Discount Club, we understand that mental illness can be a challenging and isolating experience. We want you to know that you're not alone and that there is always help available when you need it.

If you or someone you know is in crisis and needs immediate assistance, please call triple zero (000) or Lifeline on 13 11 14. Lifeline is available 24 hours a day, seven days a week, and their trained counsellors can offer support and guidance during times of crisis.

Although we are not medical professionals, we are always here to listen and provide a compassionate ear. Additionally, several organisations throughout Australia provide specialised support and education for people with mental illness and their families and carers.

We understand that seeking help can be challenging, but these organisations are here to help you through your journey. We've compiled a list of some of them here in this article, so please don't hesitate to reach out for support when you need it.

 

[Splashdolphin]

Dementia - a diagnosis that strikes fear in the hearts of those who receive it. Not only does this cruel disease rob people of their memories, but recent research has revealed a distressing link between dementia and self-harm. It's like being caught in the middle of a storm with no shelter in sight.

This alarming discovery highlights the pressing need for more support and understanding for people living with dementia and their loved ones. It's a call to action that cannot be ignored.

One person who knows all too well the devastating effects of dementia is Stephen Grady, a brilliant scientist and leader in his field. When he was diagnosed with dementia at just 60 years old, he felt like his worth had been suddenly stripped away. 'It was like I went from being a valuable member of society to being worthless,' he shared.

Stephen's story is one that many can relate to, as the diagnosis of dementia can leave people feeling hopeless and asking themselves, 'Is life still worth living?' It's a heartbreaking question that deserves a compassionate and empathetic response.

View attachment 19107

Research has found that dementia patients are more likely to self-harm within the first year of diagnosis. Credit: Unsplash/Kaspars Eglitis.

A recent study conducted at the University of New South Wales has shed new light on the devastating impact of dementia on patients and their families.

The study found that dementia patients are at a higher risk of self-harm within the first year of diagnosis, adding to the already enormous challenges faced by both patients and caregivers.

Dr Adrian Walker, the lead author of the study, described dementia as a 'perfect storm' of factors contributing to self-destructive behaviour. The research team analysed data from over 180,000 people admitted to hospitals in New South Wales between 2001 and 2015, including those diagnosed with dementia and those admitted for self-harm injuries.

The results of the study were alarming. Of the 154,811 people recorded with dementia, 692 were readmitted to the hospital for self-harm within 12 months of their first dementia visit. These findings highlight the urgent need for increased support and resources for both patients and caregivers during this challenging time.

For families who suddenly find themselves caring for a loved one with dementia, the burden can be overwhelming. The emotional toll of watching a loved one struggle with memory loss and confusion, coupled with the added stress of providing round-the-clock care, can be devastating.

The study has also raised some difficult questions regarding the complex relationship between the two. While the research suggests a strong connection between the two, the possibility of one directly causing the other remains unclear.

According to Dr Walker, it's possible that both factors are linked, but there may be other contributing factors that require further investigation.

The researchers also found that younger patients diagnosed with dementia were more likely to engage in self-harm than those who were diagnosed at an older age. Additionally, patients with complex psychiatric profiles were at a higher risk of hospitalisation for self-harm.

View attachment 19108

The research brings attention to the urgent need for increased understanding and support for those living with dementia and their families. Credit: Unsplash/Steven HWG.

In Australia alone, there are currently over 400,000 individuals living with dementia, and this number is expected to rise to over 800,000 by 2058.

Dementia is already the leading cause of death for women and the second leading cause of death for all Australians, making it a significant public health concern.

Although there are challenges in interpreting the data due to the lack of reliable information and confusion between self-harm and accidents, Associate Professor Simone Reppermund from the University of New South Wales emphasised that self-harm could be a result of the diagnosis.

Individuals with dementia may feel helpless, lonely, and devoid of purpose, leading to a sense of hopelessness and a higher risk of self-harm.

The findings of this research have been published in Alzheimer's and Dementia: The Journal of the Alzheimer's Association, serving as an essential call to action for increased support, understanding, and prevention measures for those affected by dementia.

Key Takeaways

• A recent study conducted by the University of New South Wales has found a strong link between dementia and self-harm in the first year after diagnosis.
• The research revealed that of the 154,811 people recorded with dementia in the study, 692 were readmitted to the hospital for self-harm within 12 months of their first dementia visit.
• The findings underscore the urgent need for increased support, understanding, and prevention measures for those affected by dementia.

As we look towards the future, it's clear that there is much work to be done — such as more research, treatment, and resources to better support people living with dementia and their families, who are often thrust into the role of caregivers with little warning or preparation.

We also need to work towards creating more dementia-friendly communities, where people with dementia can live with autonomy, purpose, and dignity.

What are your thoughts on this important issue? Have you or someone you know been affected by dementia? What steps do you think we can take to better support individuals living with dementia and their families? Share your thoughts and experiences in the comments below.

View attachment 19109

By working together to raise awareness and provide support, we can ensure that those living with dementia and their loved ones receive the care and compassion they need. Credit: Unsplash/Gus Moretta.

At Senior's Discount Club, we understand that mental illness can be a challenging and isolating experience. We want you to know that you're not alone and that there is always help available when you need it.

If you or someone you know is in crisis and needs immediate assistance, please call triple zero (000) or Lifeline on 13 11 14. Lifeline is available 24 hours a day, seven days a week, and their trained counsellors can offer support and guidance during times of crisis.

Although we are not medical professionals, we are always here to listen and provide a compassionate ear. Additionally, several organisations throughout Australia provide specialised support and education for people with mental illness and their families and carers.

We understand that seeking help can be challenging, but these organisations are here to help you through your journey. We've compiled a list of some of them here in this article, so please don't hesitate to reach out for support when you need it.

 

[Splashdolphin]

Dementia can be reversed

The Bredesen Protocol

The Bredesen Protocol is a comprehensive personalised program designed to improve cognition and reverse the cognitive decline of early Alzheimer’s disease. It was designed by Dr Dale Bredesen, an internationally recognised expert in the mechanisms of neurodegenerative diseases such as...

www.greenland-medical.com

 

[Kanga53]

My husband is in the early stages of dementia and I am his carer. Often he feels frustrated, saddened that he can’t remember many things and where he has placed simple things such as his wallet and glasses. At these times he feels he is useless. I wrote out for him a list of who he is ie a loving and much loved husband and father; what he has achieved in his life. The list includes his acknowledgment of his dementia BUT importantly the knowledge that he is loved and our families are there to share the journey with him. Importantly I added the following “dementia may diminish by memory but it cannot diminish me as a person and I intend to live the best life I can while I can”. Whenever he feels down I show him the list and he brightens up. There is a long road ahead of us but we are doing what we can. We go out to the ballet and concerts etc and while he won’t remember after we have left the venue he is enjoying himself while he is there. As he said “I am living in the moment”.

 

[Megter70]

Dementia - a diagnosis that strikes fear in the hearts of those who receive it. Not only does this cruel disease rob people of their memories, but recent research has revealed a distressing link between dementia and self-harm. It's like being caught in the middle of a storm with no shelter in sight.

This alarming discovery highlights the pressing need for more support and understanding for people living with dementia and their loved ones. It's a call to action that cannot be ignored.

One person who knows all too well the devastating effects of dementia is Stephen Grady, a brilliant scientist and leader in his field. When he was diagnosed with dementia at just 60 years old, he felt like his worth had been suddenly stripped away. 'It was like I went from being a valuable member of society to being worthless,' he shared.

Stephen's story is one that many can relate to, as the diagnosis of dementia can leave people feeling hopeless and asking themselves, 'Is life still worth living?' It's a heartbreaking question that deserves a compassionate and empathetic response.

View attachment 19107

Research has found that dementia patients are more likely to self-harm within the first year of diagnosis. Credit: Unsplash/Kaspars Eglitis.

A recent study conducted at the University of New South Wales has shed new light on the devastating impact of dementia on patients and their families.

The study found that dementia patients are at a higher risk of self-harm within the first year of diagnosis, adding to the already enormous challenges faced by both patients and caregivers.

Dr Adrian Walker, the lead author of the study, described dementia as a 'perfect storm' of factors contributing to self-destructive behaviour. The research team analysed data from over 180,000 people admitted to hospitals in New South Wales between 2001 and 2015, including those diagnosed with dementia and those admitted for self-harm injuries.

The results of the study were alarming. Of the 154,811 people recorded with dementia, 692 were readmitted to the hospital for self-harm within 12 months of their first dementia visit. These findings highlight the urgent need for increased support and resources for both patients and caregivers during this challenging time.

For families who suddenly find themselves caring for a loved one with dementia, the burden can be overwhelming. The emotional toll of watching a loved one struggle with memory loss and confusion, coupled with the added stress of providing round-the-clock care, can be devastating.

The study has also raised some difficult questions regarding the complex relationship between the two. While the research suggests a strong connection between the two, the possibility of one directly causing the other remains unclear.

According to Dr Walker, it's possible that both factors are linked, but there may be other contributing factors that require further investigation.

The researchers also found that younger patients diagnosed with dementia were more likely to engage in self-harm than those who were diagnosed at an older age. Additionally, patients with complex psychiatric profiles were at a higher risk of hospitalisation for self-harm.

View attachment 19108

The research brings attention to the urgent need for increased understanding and support for those living with dementia and their families. Credit: Unsplash/Steven HWG.

In Australia alone, there are currently over 400,000 individuals living with dementia, and this number is expected to rise to over 800,000 by 2058.

Dementia is already the leading cause of death for women and the second leading cause of death for all Australians, making it a significant public health concern.

Although there are challenges in interpreting the data due to the lack of reliable information and confusion between self-harm and accidents, Associate Professor Simone Reppermund from the University of New South Wales emphasised that self-harm could be a result of the diagnosis.

Individuals with dementia may feel helpless, lonely, and devoid of purpose, leading to a sense of hopelessness and a higher risk of self-harm.

The findings of this research have been published in Alzheimer's and Dementia: The Journal of the Alzheimer's Association, serving as an essential call to action for increased support, understanding, and prevention measures for those affected by dementia.

Key Takeaways

• A recent study conducted by the University of New South Wales has found a strong link between dementia and self-harm in the first year after diagnosis.
• The research revealed that of the 154,811 people recorded with dementia in the study, 692 were readmitted to the hospital for self-harm within 12 months of their first dementia visit.
• The findings underscore the urgent need for increased support, understanding, and prevention measures for those affected by dementia.

As we look towards the future, it's clear that there is much work to be done — such as more research, treatment, and resources to better support people living with dementia and their families, who are often thrust into the role of caregivers with little warning or preparation.

We also need to work towards creating more dementia-friendly communities, where people with dementia can live with autonomy, purpose, and dignity.

What are your thoughts on this important issue? Have you or someone you know been affected by dementia? What steps do you think we can take to better support individuals living with dementia and their families? Share your thoughts and experiences in the comments below.

View attachment 19109

By working together to raise awareness and provide support, we can ensure that those living with dementia and their loved ones receive the care and compassion they need. Credit: Unsplash/Gus Moretta.

At Senior's Discount Club, we understand that mental illness can be a challenging and isolating experience. We want you to know that you're not alone and that there is always help available when you need it.

If you or someone you know is in crisis and needs immediate assistance, please call triple zero (000) or Lifeline on 13 11 14. Lifeline is available 24 hours a day, seven days a week, and their trained counsellors can offer support and guidance during times of crisis.

Although we are not medical professionals, we are always here to listen and provide a compassionate ear. Additionally, several organisations throughout Australia provide specialised support and education for people with mental illness and their families and carers.

We understand that seeking help can be challenging, but these organisations are here to help you through your journey. We've compiled a list of some of them here in this article, so please don't hesitate to reach out for support when you need it.

My husband is in the early stages of dementia and I am his carer. Often he feels frustrated, saddened that he can’t remember many things and where he has placed simple things such as his wallet and glasses. At these times he feels he is useless. I wrote out for him a list of who he is ie a loving and much loved husband and father; what he has achieved in his life. The list includes his acknowledgment of his dementia BUT importantly the knowledge that he is loved and our families are there to share the journey with him. Importantly I added the following “dementia may diminish by memory but it cannot diminish me as a person and I intend to live the best life I can while I can”. Whenever he feels down I show him the list and he brightens up. There is a long road ahead of us but we are doing what we can. We go out to the ballet and concerts etc and while he won’t remember after we have left the venue he is enjoying himself while he is there. As he said “I am living in the moment”.

 

[MariaG]

My husband is in the early stages of dementia and I am his carer. Often he feels frustrated, saddened that he can’t remember many things and where he has placed simple things such as his wallet and glasses. At these times he feels he is useless. I wrote out for him a list of who he is ie a loving and much loved husband and father; what he has achieved in his life. The list includes his acknowledgment of his dementia BUT importantly the knowledge that he is loved and our families are there to share the journey with him. Importantly I added the following “dementia may diminish by memory but it cannot diminish me as a person and I intend to live the best life I can while I can”. Whenever he feels down I show him the list and he brightens up. There is a long road ahead of us but we are doing what we can. We go out to the ballet and concerts etc and while he won’t remember after we have left the venue he is enjoying himself while he is there. As he said “I am living in the moment”.

Bless you and your hubby. One cannot even imagine what this is like for families until going through it themselves. My heart is with you.

 

[MariaG]

I lost my mum to dementia in August of 22.
It was painful to watch her deteriorate a bit at a time, but she had us around her every day.
What mum always said, when she had her full faculty, was that she just wanted to go to bed one night and pass with peace. Dementia robbed her of that.
The last few days were horrendous for her. I cannot describe the events because it is too upsetting.
All I know is that if mum had known what was ahead, she may well have tried to find a way of leaving us earlier.
There is no advice anyone can offer to families who are living with this. Just support.

 

[Megter70]

I cared for my Mum who was diagnosed with Alzheimer's dementia in her mid '70's until she passed away. It can be a difficult & trying time, but as an RN I knew that it would be difficult, but I also had support from a care group as well. Even though I knew the concerns re home care, it was something that I had always decided to do. Being able to talk about this issue also helped immensely. I know that I also have the possibility of being in a similar boat (tested genetically), & have let my family know my wishes for care if/when this occurs.

 

[B J Bear]

I have lived with Alzheimer's for 12 years as carer for my wife. I cared for her at home for 9 years which was demanding 24 seven until I had no alternative but to put her into a care facility until she passed away from this dreadful disease 18 months ago. I have now dedicated the rest of my life to educating families of loved ones on how to care for and understand this disease. I saw far to much of loved one being dumped in care and then forgotten. Yes, they need clinical care but also personal love and care on a regular basis. Through my Lions Club of Coolangatta & Tweed Heads I organized a series of public forums on the Gold Coast and Tweed Heads, presented by Professor Ralph Martins who is the Chair of Aging and Alzheimer's disease at Edith Cowan Uni in WA and Professor of Neurobiology at Macquarie Uni in NSW and a world renown research expert on Alzheimer's disease. Following the success of that educational program I have now put to the Lions of Australia Alzheimer's Foundation in conjunction with Professor Martins, a program to take my project of understanding and education nationwide to make all people aware of this insidious disease. This program will roll out over the next year or so. Alzheimer's will become the most serious health issue this country and the world will experience, and it is time that Governments took some responsibility for this issue and not just leave it to volunteers. Bryan

 

[Catherines]

So nice to hear of your love and care for your dear wife and my thoughts go out to you offering my love and wishes to the loving husband she had. Husbands and wives are so very caring to their partners most of the time; that is what partners do for love. My mother had dementia but unfortunately we had to put her into a care home and she was there for just short of 6 years before she passed.

I look forward to your program with Lions of Australia Alzheimer’s Association - I live in Brisbane and if it does not come here as a live and informative discussion I hope you will organise it in book form.

 

[Suzanne rose]

My husband is in the early stages of dementia and I am his carer. Often he feels frustrated, saddened that he can’t remember many things and where he has placed simple things such as his wallet and glasses. At these times he feels he is useless. I wrote out for him a list of who he is ie a loving and much loved husband and father; what he has achieved in his life. The list includes his acknowledgment of his dementia BUT importantly the knowledge that he is loved and our families are there to share the journey with him. Importantly I added the following “dementia may diminish by memory but it cannot diminish me as a person and I intend to live the best life I can while I can”. Whenever he feels down I show him the list and he brightens up. There is a long road ahead of us but we are doing what we can. We go out to the ballet and concerts etc and while he won’t remember after we have left the venue he is enjoying himself while he is there. As he said “I am living in the moment”.

My heart goes out to both if you. It's sad seeing this. At least he is remembering you. Make every day count and also make sure you also look after you. Take some time out for you even if it's a coffee with a friend .
I wished there was something we could do for you

 

[Kanga53]

Bless you and your hubby. One cannot even imagine what this is like for families until going through it themselves. My heart is with you.

Thank you. Your kind words are most helpful.

 

[Kanga53]

My heart goes out to both if you. It's sad seeing this. At least he is remembering you. Make every day count and also make sure you also look after you. Take some time out for you even if it's a coffee with a friend .
I wished there was something we could do for you

Thank you for your kind words. They are most helpful. I am fortunate that I have wonderful a family and neighbours who are there for us.