The Silent Struggle: Discover the Vicious Cycle plaguing Australians with Chronic Pain

Chronic pain is a silent thief, robbing millions of Australians of their comfort, mobility, and quality of life. It's a condition that doesn't discriminate, affecting individuals from all walks of life, and yet, it often goes unnoticed by the wider community. The struggle is real and relentless for those like Perth resident Roberta Lilley, who can barely move ten meters without enduring excruciating pain.

Roberta's daily battles with fibromyalgia—a condition characterized by widespread body pain, fatigue, and cognitive difficulties—paint a vivid picture of the challenges faced by the 3.6 million Australians living with chronic pain. The recent Chronic Pain Australia National Pain Report sheds light on the pervasive impact of conditions like fibromyalgia, back pain, and nerve pain, which not only hinder personal well-being but also have profound social and economic repercussions.


The report reveals a stark reality: nearly half of those surveyed had to cease working due to their pain, and almost 30 per cent had to reduce their working hours. This contradicts the misconception that individuals use chronic pain as an excuse to avoid work. On the contrary, many, like Roberta, have struggled to come to terms with the likelihood of never working again—a distressing prospect that can lead to a sense of loss and identity crisis.


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Perth resident Roberta Lilley’s life is profoundly impacted by fibromyalgia, highlighting the struggles of many Australians with chronic pain. Credit: Shutterstock


Chronic pain doesn't stop at the individual; it seeps into every aspect of their personal life. Two-thirds of respondents admitted that their condition strained or even destroyed relationships. The emotional toll is so heavy that nearly half have contemplated suicide. The invisible nature of chronic pain often leaves sufferers like Paula, who battles rheumatoid arthritis, feeling misunderstood and isolated. The inability to participate in everyday activities without enduring days or weeks of subsequent pain can be alienating, not just for the sufferers but also for their families and loved ones.


The journey to finding support and effective treatment is fraught with obstacles. A staggering 45 percent of people reported taking more than three years to receive a diagnosis. Even with a diagnosis, access to multidisciplinary care—the gold standard for managing complex pain conditions—remains elusive, with only one in five being referred to a specialized pain management program or clinic.

The lack of understanding and support from the medical community compounds the problem. Many doctors still question the legitimacy of conditions like fibromyalgia, and patients are often unfairly labelled as drug-seeking. This scepticism and stigma create a vicious cycle that Chronic Pain Australia president Nicolette Ellis describes as not only detrimental to the individuals but also a drain on society. The workforce loses skilled workers, and without proper care, those with chronic pain risk a lifetime of disability and severe mental health issues.

The tragedy, as Paula points out, is that medicine could do more. The future seems bleak for the younger generation slowly receiving diagnoses, facing a life overshadowed by pain. Yet, despite the grim outlook, there's a resilience that shines through the stories of those like Roberta and Paula. Every day is a challenge, but they persevere, doing whatever it takes to manage their condition and maintain hope.


The Silent Struggle of Australians with chronic pain is a call to action. It's a reminder that as a society, we must listen, understand, and advocate for better care and support for those affected. It's a plea for empathy and a push for medical advancements that can transform lives. The fight against chronic pain is not just an individual battle; it's a collective responsibility—one that we must undertake with compassion and determination.

Key Takeaways
  • Perth resident Roberta Lilley's life is deeply affected by fibromyalgia, an incurable condition causing widespread pain, illustrating the struggles many Australians with chronic pain face.
  • million Australians live with chronic pain, with conditions such as fibromyalgia, back pain, and nerve pain being the most common, and the pain significantly impacts their ability to work and personal relationships.
  • The Chronic Pain Australia National Pain Report highlights that chronic pain diagnosis can be a lengthy process and that multidisciplinary care, though the gold standard for such conditions, is often inaccessible.
  • Chronic pain not only creates a vicious cycle for those who suffer from it but also poses a significant challenge to society, with many affected individuals unable to work and at risk of serious mental health issues.

We invite our readers to share their experiences with chronic pain and join the conversation. How has chronic pain affected your life or the lives of those you love? What changes would you like to see in the healthcare system to better support those with chronic pain? Your stories and insights are valuable as we work together to bring attention to this silent struggle.
 
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I have chronic pain from osteoarthritis, had a fracture in my spine at some time and have sciatica down my left side as well as bursitis in my left hip diagnose just before July, ended up with a cortisone injection in my hip about 4 weeks ago. Helped a little, have osteoporosis, something else that causes severe pain in my right leg caused from blocked in the arteries. Doctor I have now tells me to take Panadol or to rub my hands for the pain from osteoarthritis. A lot of help. NO 😡
 
I have chronic pain from osteoarthritis, had a fracture in my spine at some time and have sciatica down my left side as well as bursitis in my left hip diagnose just before July, ended up with a cortisone injection in my hip about 4 weeks ago. Helped a little, have osteoporosis, something else that causes severe pain in my right leg caused from blocked in the arteries. Doctor I have now tells me to take Panadol or to rub my hands for the pain from osteoarthritis. A lot of help. NO 😡
I reckon I know more about chronic pain than any of the doctors I’ve been too.🧐
 
I live with chronic pain every day some days are better than others. I think l am one of the lucky ones l push on, some days l over do things and the pain gets a bit over the top. When the flare ups come it can be very challenging. I do find family members don't understand because they cannot see the inflammation l am feeling. Oh what is wrong ? You don't sound happy. Well today is a bad day. I suppose you have been doing to much. Truly no idea. In saying that if you have never experienced chronic pain one cannot expect one to understand it's really crap.
Kind regards to all Vicki
 
I've been living with severe chronic pain now for over 30 years and have become allergic to all affordable medications except for Clonidine, the last one available on PBS. I was told before I was 40 that I had only 6 months left to live, I recently celebrated my 70th birthday so obviously the doctors were wrong. However there are some days when the pain is so bad that I wish for death!
 
I've been living with severe chronic pain now for over 30 years and have become allergic to all affordable medications except for Clonidine, the last one available on PBS. I was told before I was 40 that I had only 6 months left to live, I recently celebrated my 70th birthday so obviously the doctors were wrong. However there are some days when the pain is so bad that I wish for death!
Oh Margaret darling, l am so sorry you live with chronic pain every day. Yes some days are a lot worse than others. Bless you for sticking it up the Dr l truly hope you make it another 30 years. Back in the day dr's were out right cold and rude. My experience from when my son was born with a birth defect was devastating dealing with all the different specialists. I was 22 at the time very young and had not experienced anything like what was ahead for the next 18 years. I soon learnt that older men drs back 39 years ago had no tact or feelings thank goodness that has changed now.
Please darling keep on doing the very best you can and on the bad days try do something that truly makes you happy and peaceful. I know that sounds ridiculous when you are in pain. Even if it's sitting in the sun reading a book. Lying on the couch watching a movie. Or ring Life Line and have a chat they are the most beautiful souls to talk to. Please take care.
And hang out with us here for the next 30 years 😻
Love to you Vicki
 
I have chronic pain from osteoarthritis, had a fracture in my spine at some time and have sciatica down my left side as well as bursitis in my left hip diagnose just before July, ended up with a cortisone injection in my hip about 4 weeks ago. Helped a little, have osteoporosis, something else that causes severe pain in my right leg caused from blocked in the arteries. Doctor I have now tells me to take Panadol or to rub my hands for the pain from osteoarthritis. A lot of help. NO 😡
Find another doctor I did and my life is better for it - I have recently purchased an upright walker which has helped me enormously and my GP is over the moon for the difference it has made. Mind you I will be on strong pain relief until I kick the bucket but life is better for it.
 
I've been living with severe chronic pain now for over 30 years and have become allergic to all affordable medications except for Clonidine, the last one available on PBS. I was told before I was 40 that I had only 6 months left to live, I recently celebrated my 70th birthday so obviously the doctors were wrong. However there are some days when the pain is so bad that I wish for death!
I am hearing you and think the same way some days - but when you have a good day the sun is shining. All the best my dear.
 
Find another doctor I did and my life is better for it - I have recently purchased an upright walker which has helped me enormously and my GP is over the moon for the difference it has made. Mind you I will be on strong pain relief until I kick the bucket but life is better for it.
Oh my goodness you sound like me l have a few more things, but the oesto arthritis is full on. I have to use crutches and a walker. Maybe you could use a walker it might help you. I have been on the crutches for the past three years, due to my back having sciatica arthritis and severe curvature the crutches help a lot l cannot walk without them as l will topple over. Even though l use these aids l am still very stooped over they do help with the pain too. Please try go for a walk each day it will help.
The old saying move it or loose it. As painful as it is l go every day it keeps us moving.
Also change drs.
Good luck and good health.
Kind regards Vicki
 
I am sorry to read about the awful pain my friends here have had or have now. I have had my fair share of ailments but none that come close to yours. My heart goes out to you all as l try to imagine your pains.
I am always encouraged by the advice given by Bella & thank her for her encouragement to us all.
I wish every person here my very best wishes for their future.

I was just watching a piece on T.V. from one of our Paralympian swimmers & find her so inspirational. With one good leg & orthotic for the other since she was a very young child she is following her dream of going into the Olympics. Just shows anything is possible, something l am still coming to terms with.
 
I am sorry to read about the awful pain my friends here have had or have now. I have had my fair share of ailments but none that come close to yours. My heart goes out to you all as l try to imagine your pains.
I am always encouraged by the advice given by Bella & thank her for her encouragement to us all.
I wish every person here my very best wishes for their future.

I was just watching a piece on T.V. from one of our Paralympian swimmers & find her so inspirational. With one good leg & orthotic for the other since she was a very young child she is following her dream of going into the Olympics. Just shows anything is possible, something l am still coming to terms with.
Yeah I saw that piece on tv, I am so looking forward to watching the para olympics they are like you say so inspirational. I never watched the other Olympics so bring them on. 😊
 
Bless you Ezzy, you are so kind. My attitude is just keep on going the best you can. In saying that I must have looked crook today. While my husband and I were doing the weekly shop, which l don't like one bit a lovely man gave way to me in the isle as usual l was bent over my walker. As l was smiling at him and about to thank him. He asked are you alright? Yes thank you just got a lot of pain nothing new thanks pet. When l caught up with my husband. I asked do l look crap 😲 today. No you just look 😩 tired.
I thought 🤔 yes you don't see it anymore 🙈 it is what it is. Just got to put one sorry foot in front of the other. Life is for living the best we can. 😁
You are far to kind Ezzy. Thank you for your support.
Kind regards Vicki
 
Bless you Ezzy, you are so kind. My attitude is just keep on going the best you can. In saying that I must have looked crook today. While my husband and I were doing the weekly shop, which l don't like one bit a lovely man gave way to me in the isle as usual l was bent over my walker. As l was smiling at him and about to thank him. He asked are you alright? Yes thank you just got a lot of pain nothing new thanks pet. When l caught up with my husband. I asked do l look crap 😲 today. No you just look 😩 tired.
I thought 🤔 yes you don't see it anymore 🙈 it is what it is. Just got to put one sorry foot in front of the other. Life is for living the best we can. 😁
You are far to kind Ezzy. Thank you for your support.
Kind regards Vicki
Thank you for your kind words Bella. You are an exceptional friend here.
Chivalry is not dead & such a kind gesture on the part of that gent.
Kind hubby. He sees you every day & l am sure feels your pain too.
People in drug & alcohol rehabilitation say, 'One day @ a time' which is the same as saying, 'Got to keep going, one foot in front of the other'. 🙏
 
Thank you for your kind words Bella. You are an exceptional friend here.
Chivalry is not dead & such a kind gesture on the part of that gent.
Kind hubby. He sees you every day & l am sure feels your pain too.
People in drug & alcohol rehabilitation say, 'One day @ a time' which is the same as saying, 'Got to keep going, one foot in front of the other'. 🙏
Thank you darling, yep one day at a time. Yep hubby is the best he looks after me. Kind regards Vicki
 
Oh Margaret darling, l am so sorry you live with chronic pain every day. Yes some days are a lot worse than others. Bless you for sticking it up the Dr l truly hope you make it another 30 years. Back in the day dr's were out right cold and rude. My experience from when my son was born with a birth defect was devastating dealing with all the different specialists. I was 22 at the time very young and had not experienced anything like what was ahead for the next 18 years. I soon learnt that older men drs back 39 years ago had no tact or feelings thank goodness that has changed now.
Please darling keep on doing the very best you can and on the bad days try do something that truly makes you happy and peaceful. I know that sounds ridiculous when you are in pain. Even if it's sitting in the sun reading a book. Lying on the couch watching a movie. Or ring Life Line and have a chat they are the most beautiful souls to talk to. Please take care.
And hang out with us here for the next 30 years 😻
Love to you Vicki
Thank you Bella (Vicki), please don't worry I'm not going anywhere yet. I didn't want to do to my children, what was done to my brother and myself, by refusing to go into care until the day I was discovered lying unconscious in my own filth and the decision was forced. So I applied to go into Aged Care residence of my choice now.
In that way I can continue to live the best life possible for me without stressing over not being able to clean, make meals etc regularly. I miss not being able to be with my street friends on a regular basis, but I have lots of new friends now.
Each moment is treasured, as I said, some are better than others but I continue to do what I can when I can to the best of my ability; even if that is limited by pain to lying in bed and breathing! God bless.
 
Thank you Bella (Vicki), please don't worry I'm not going anywhere yet. I didn't want to do to my children, what was done to my brother and myself, by refusing to go into care until the day I was discovered lying unconscious in my own filth and the decision was forced. So I applied to go into Aged Care residence of my choice now.
In that way I can continue to live the best life possible for me without stressing over not being able to clean, make meals etc regularly. I miss not being able to be with my street friends on a regular basis, but I have lots of new friends now.
Each moment is treasured, as I said, some are better than others but I continue to do what I can when I can to the best of my ability; even if that is limited by pain to lying in bed and breathing! God bless.
Oh Margaret darling, you are an awesome amazing strong lady with so much dignity. I am sending you so much love and strength. I am so pleased you have met up with new friends. We all need to be able to talk. And everyone has a story to tell.
If you are referring to your parents we learn by their mistakes and choose not to do the same to our own children. I am so very sorry you and your brother had to go through that.
You keep strong my darling. Think of your beautiful children and maybe grandchildren on those bad days l am sure that will put a smile on your beautiful face between the pain.
Keep strong all my love to you.
Vicki 💝
 
Anyone wanting information can subscribe to getting emails from Chronic Pain Clinic Australia I did and they send you heaps of important and interesting information about chronic pain.
[email protected]
Cheers 😊
Thank you Littleboy,
You are very kind to share that information for us all suffering from Chronic Pain. It really makes you feel we are not alone.
Kind regards Vicki
 

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